Turner Syndrome Project
Vital Stats
Colleen R
Lincroft, NJ- people helped75
- People Doing It 8
The Problem
Turner Syndrome is a common, but little known chromosomal deficiency that effects 1 in every 2000 girls. Common features of girls and women with Turner Syndrome are caused by a complete or partial absence of the second X chromosome. Primary characteristics are very short stature (average height of a full grown woman with TS is 4'8"), premature ovarian failure, heart conditions, kidney abnormalities, hypothyroidism, and hearing loss.
Medical evidence suggests that if caught early on in infancy, the effects of Turner Syndrome can be treated, and therefore controlled, with hormone therapy. The problem with this is that TS is difficult to diagnose and many doctors don't even know to test for it. So by the time TS becomes evident, it may be too late.
Alpha Pi Theta Honor Society at Brookdale Community College decided to aim to abolish ignorance of Turner Syndrome from the Brookdale campus, because with knowledge comes earlier treatment of this disorder and leads to a healthier brighter future for girls with Turner Syndrome.
Plan of Action
First, Alpha Pi Theta held a Turner Syndrome Seminar on Brookdale's campus during college hour, to raise awareness of this disorder to the college and community. The Turner Syndrome Foundation, along with world-renowned doctors came to speak at the seminar and over 60 students, faculty, and community members came to listen and learn. We had several sign ups to join the TSF mailing and volunteer list.
After this success, we continued on to coordinate the creation of a mosaic, later to be called the Turner Syndrome Mosaic. With the use of wooden boards, cement boards, tiles, and tile glue, largely donated by Home Depot of Hazlet, we began creation of a tri-fold wooden board which could be stood up or hung up in a public location for continued and forever awareness of Turner Syndrome. Each tile is painted by a community member or business that supports the TSF and Alpha Pi Theta.
After it was finally completed, the Jersey Shore University Medical Center in Neptune, New Jersey, welcomed the mosaic with open arms into their hospital. It is now found hug up on a wall of the main doctor's lounge. The mosaic will be seen by hundreds of doctors and medical professionals every day.
As for the TSF, our seminar was their first, and they were inspired to continue on. Their next seminar will be held at Kean University in the Spring.
And as for Alpha Pi Theta, we continue to donate and volunteer for the TSF whenever we are needed, and are participating in the TSF's NJ Marathon this Spring.






