Project Description
The ultimate goal of "The Singer Twins - Making A Difference," is to help cure diabetes. To accomplish this goal, my twin sister, Mollie, and I, focus on four primary areas: Awareness, Advocacy, Fundraising and Mentoring. However, by nature, Mollie and I are shy. Luckily, we are able to draw on our musical talent with which we have been blessed to help us overcome our shyness, ultimately enabling us to reach larger audiences and communicate our positive message.
Awareness:
Awareness is for both diabetics and their family, friends, and peers, as we help diabetics realize the importance of living a healthy lifestyle by means of a positive attitude and proper diabetes management and we educate non-diabetics as to the complications, difficulties, and fears diabetics face on a daily basis, as well as, how they can be helpful and supportive in a diabetic's life. To begin with, we created www.jackieandmollie.com (soon to be: www.jackieandmolliesinger.com) where we help others learn about us and our activities, explain diabetes at great length, and encourage them to join us as we “Make A Difference.” Additionally, we speak at public forums, support groups, and schools, to students, teachers, and administrators in an attempt to educate them as to the needs of a diabetic in the educational and work environment. Moreover, for approximately two years, we filmed an ongoing Video-Diary for ABC’s Good Morning America, about living with diabetes and overcoming the struggles and fear of a child wearing an insulin pump. We also participated in multiple educational documentaries for newly diagnosed children and teen diabetics and their families that are designed to replace the fear a newly diagnosed diabetic experiences, with a sense of hope that a cure will be found and the belief that they are not alone. Furthermore, we have filmed several PSA’s, readily give interviews to educate the news media about diabetes related topics, and at 11 years old, Mollie and I wrote a booklet entitled, “The Road To The Cure,” which explains to children everywhere, no matter their age, that like us they too can “Make A Difference.” Finally, we created the first chapter of The Diabetic Angels, a club for diabetics of all ages, but especially young diabetics that teaches a diabetic’s family, friends and peers what it is like to live with diabetes. In order to become a diabetic angel, one must agree to learn about diabetes, know what to do in emergency, agree to be their diabetic’s advocate, and above all, show compassion and understanding to everyone, especially those whose lives are more challenging.
Advocacy:
At the age of 7, Mollie and I began advocating for a cure for diabetes locally and nationally. Over the past 11 years, the two of us organized an extensive letter writing campaign to Former President Clinton that was written by hundreds of children, met with President Bush on three separate occasions and successfully lobbied many of the members of The U.S. House and Senate. We went on to testify twice before Congress, asking them to increase funding for diabetes research. In so doing, we helped to obtain congressional support on a variety of medical and technology related bills that have and will continue to benefit diabetics everywhere. We continue to lobby congress having most recently met with John Porter and Shelly Berkley and this past May, we met with two members of the President’s Domestic Policy Council at the White House and spoke with them regarding the urgent need to increase funding for NIH. This successful meeting was in reference to funding new and innovative technology that will improve diabetes management, i.e. insulin pumps, continuous glucose monitors, and hopefully in the near future, implantable insulin pumps and monitors. Due to the severity of this devastating disease, and our determination to cure diabetes in our lifetime, for Mollie and me, advocacy is not an option, but a way of life.
Fundraising:
Mollie and I began our fundraising efforts at the age of 6, when we opened a lemonade stand outside our home which at the time was under construction, and over the course of the summer (Las Vegas summers are VEERRRYY long and hot) we successfully raised over $2,000.00; we were instantly convinced that this was enough to cure diabetes, but of course our bubble burst and reality set in that we would most likely be continuing our fundraising endeavors for some years to come. Shortly thereafter, we began regularly speaking at CEO Breakfasts (Major Donors) explaining to the executives what it was like to live with diabetes and how it impacted the diabetic’s entire family and their way of life. We also demonstrated exactly how Mollie poked her fingers with a lancet to test her blood sugar and informed them that in order to stay healthy and maintain good diabetes control, she needed to test her fingers 10-15 times a day and even more often when she was sick. We explained to the CEO’s that by financially supporting our efforts and those of JDRF that they could be the ones to “Make A Difference” in the life of so many diabetics. That same year we organized our first Walk Team raising funds as we participated in JDRF’s Annual Walk to Cure Diabetes. Over the years, we continue to organize and grow our Walk Team and its supporters, known as “Mollie’s Mafia,” who raise funds by the slogan, “GIVE US A CURE WE CAN’T REFUSE!!” Further fundraising efforts include organizing, participating, and performing at special events and benefit concerts, such as this year’s outdoor concert, “Rock The Walk.” All in all, it is gratifying to know that over the past 11 years, our resolve to cure diabetes has resulted in our raising more than a half a million dollars ($500,000.00) for diabetes research and medical technology!
Mentoring:
Even though Mollie and I are only 18-years-old, we have been privileged to spend the last five years volunteering as two of the few Juvenile Diabetes Research Foundation’s teenage Cyber-Volunteers. Although Mollie and I never offer medical or legal advice, our responsibilities do encompass counseling newly diagnosed diabetics, their siblings, and their friends about everyone maintaining a positive attitude and the importance of the proper diabetes management, so that they are able to support the diabetic in their life. Additionally, we inform them of helpful and educational diabetes resources and the importance of everyone becoming involved in curing diabetes, or engaged in any cause that helps them keep their diabetes in perspective. Instilling a sense of gratitude and hope in a diabetic who may be angry, frustrated, or confused, helps the diabetic appreciate all that is good in their life rather than giving them an excuse to dwell on the negative; being a positive and responsible diabetic means taking control of their disease and not letting diabetes control them. In addition to our volunteer work with the Juvenile Diabetes Research Foundation, for the past five years we have been mentoring diabetics and their siblings from around the world, beginning with a diabetic Xanga and for the last three years with www.curemoll.com, our diabetes blog, through which we have mentored diabetics and their siblings on six continents. Overall, our goal in mentoring is to convey a message of hope for the future, to be role models by demonstrating the benefits of giving of yourself to help others as a way of maintaining a positive attitude, and ultimately helping all diabetics, their families and their friends obtain the tools they need to be healthy, so that when the cure is found, they will be able to benefit from everyone’s hard work and research.
Mollie and I believe that we have much to be grateful for, and enjoy helping others. However, we hope that the example we set will encourage other young people to give of themselves, for together, if everyone gave just a little, we would cause a rippling effect of caring and giving that would spread around the world, making a difference in the lives of millions.